The University of Sydney, Western Sydney University, HammondCare, Flinders University, Unisson Disability and CareSearch, worked together to develop this free online toolkit intended to help staff and caregivers teach people with learning disabilities about end of life. Find out more and access the toolkit here.
This network aims “to raise awareness of the palliative care needs of people with learning disabilities, to share and promote ‘best practice’ and to enhance collaboration between all services providers, carers and people with a learning disability.” Find out more here.
Developed in partnership by Nottinghamshire Healthcare NHS Foundation Trust and Sherwood Forest Hospitals NHS Foundation Trust, this resource pack aims to take steps to reduce the barriers faced by the patient group and support all involved in providing high quality and equitable care at end of an individual’s life. Access the resource pack here.
Every year in May, Dying Matters hosts an Awareness Week, which gives an unparalleled opportunity to place the importance of talking about dying, death and bereavement firmly on the national agenda. In 2020, the week will run from 11th to the 17th of May and the theme will be “Dying to be Heard”. Click here … Read more
This guidance document by NHS England (2017) provides resources and tips for commissioners, service providers and health and social care staff providing, or delivering care to people with a learning disability at the end of their lives. View the guidance document here.
This resource by MacIntyre (2018) introduces what validation and reality orientation are, when to use these methods and weigh up the benefits of using either validation or reality orientation. Download the PDF here.
This resource by MacIntyre (2018) covers medical and non-medical treatments that can be used in supporting someone with dementia and Alzheimer’s. It also provides guidance in understanding how to support someone to make their own decisions about treatments. Download the PDF here.
This resource by MacIntyre (2018) explains the signs and symptoms of dementia and how they might manifest in someone with a learning disability. It also covers other conditions that can sometimes be confused with dementia and best practice for spotting the signs and using assessment tools for people with down’s syndrome. Download the PDF here.
This resource by Surrey and Borders Partnership NHS Foundation Trust introduces what dementia is in terms of its effects on a person’s everyday life, introduces the philosophy of care and how to put it into practice. Download the PDF here.
This poster by Surrey and Borders Partnership NHS Foundation Trust introduces the philosophy of care for people who have developed dementia, specifically those who have down’s syndrome. Download the poster here.