New BILD publications catalogue
BILD's new books
catalogue gives full details about our range of books about protecting the
rights of people with learning disabilities and working in person centred ways. It covers a wide range of subjects, from understanding autism to positive
behaviour support.
You can download the catalogue using the link below, or we
can send you a copy by post if you email
t.tindell@bild.org.uk or telephone 01562 723010.
Download the new BILD publications catalogue
BILD launches new low cost student membership
We
have launched a new Student membership which will offer a wide
range of benefits to students in health, education, nursing, and
social care - all for only £10 a year.
The aim is to ensure students have easy access to BILD’s
learning disabilities expertise while being able to take
advantage of discounts on personal development services such as
BILD events and conferences. Both BILD and the students will
gain from the exchange of ideas and best practice during their
membership, people with learning disabilities will gain from a
future workforce that is focussed on what they have said they
want and need.
The new student membership was launched at the National
Network of Learning Disabilities Nurses (NNLDN) Networking
conference in York on 19 July. Also at this event were 100
learning disability nursing students attending a Positive
Choices Network event being run in parallel.
“Our hope is students will take the chance this membership
offers to access our expertise and information and the
opportunities to network with others interested in this field”,
said Keith Smith, BILD Chief Executive.
To find out more either go to our
membership pages,
download the information leaflet and application form, or go
straight to
purchase a student membership online now.
Giving
Us A Voice – Meeting the needs of people with learning
disabilities from BME communities
ARC, BILD and Mencap are bringing people together for
constructive dialogue in 9 Regional Summit Meetings around
England.
Dates for 2010:
1st November at Exeter
3rd November at Nottingham
11th November at Newcastle
16th November at Preston
Dates for 2011:
12th January at Birmingham
13th January at Cambridge
20th January at Brighton
25th January at London
3rd February at Leeds
This 18-month project, funded by the Department For Communities
and Local Government under its Tackling Race Inequalities Fund,
will give you the opportunity to talk and learn from people with
learning disabilities and family carers from BME communities.
The project will also launch a National Charter for Inclusion
and will invite you to sign up to it as part of your ongoing
commitment to delivering quality services.
The benefits of getting involved:
- You will have the opportunity to meet local people from
BME communities, to learn about their specific cultures, to
hear about the problems that they have and find out what
they need from your services
- Your strategic plan for future services will be based on
first-hand knowledge
- You will be able to demonstrate a commitment to equality
- You will have a good platform for developing your race
equality impact assessment
- You will meet families from BME communities who could be
involved in your Learning Disability Partnership Board
- You will have the opportunity to explain the problems
and realities of delivering services today.
Flyers for either professionals, families or self-advocacy
and booking forms for each event are available to download at:
http://www.lden.org.uk/page9/page105/page105.html
If you would like to discuss the project or events please
contact:
Professionals:
Philip Ware –
philip.ware@arcuk.org.uk
Lesley Dean –
lesley.dean@arcuk.org.uk
Families:
Ghzala Ahmad –
ghzala.ahmad@mencap.org.uk
Oi Mei Li –
givingusavoice@mencap.org.uk
Self-Advocacy:
Ola Odeyemi – ola@bild.org.uk
Sarah Rafiq –
s.rafiq@bild.org.uk
The events are FREE to attend.
Completed booking forms should be sent to:
Pam Smith –
pam.smith@arcuk.org.uk
ARC, ARC House, Marsden Street, Chesterfield, Derbyshire S40 1JY
Auditors
BILD is reviewing the provision of audit services commencing
with the financial year ending 31 March 2011.
Any qualified audit firms with experience of charity
reporting and accounts are invited to express an interest in the
first instance by contacting Jon Kelly, Head of Finance on 01562
723010 or j.kelly@bild.org.uk.
Deadline for submission of tenders is 12.00 am, 28 July 2010.
ACT, the Ann Craft Trust, and BILD are
collaborating on a two year project, funded by the Department of
Health. The aim of this project is to produce a training pack
that will be available and accessible to all people supporting
people with learning disabilities with their financial
management. It will also incorporate training for people with
learning disabilities themselves in order to raise their
awareness about all aspects of safeguarding their finances.
Advocates, deputies, IMCAs, brokers and carers will benefit from
the training materials that will offer them sound financial
management advice and information about prevention and detection
of financial abuse.
This resource will develop guidance on financial abuse and the
balance between risk, choice and autonomy with reference to
human rights and the Mental Capacity Act. Very little work has
been done on tackling abuse through advocacy good practice,
although training for advocates and those in contact with
vulnerable people is crucial. The personalisation agenda
supports personal choice and control, but may potentially give
rise to new opportunities for financial abuse. New avenues for
financial crimes also arise from new technology such as phishing
and internet scams alongside an increasing use of the internet
by people with learning disabilities.
This project will provide accessible training to all those who
may be responsible for safeguarding people with learning
disabilities from abuse, as well as people with learning
disabilities themselves. Prevention, detection and reporting of
abuse will be covered in the training pack. It will promote best
practice in financial management and its outcomes will include
support for people to manage their finances independently; how
to make support arrangements clear, safe and accountable;
considering the balance between independence and security; and
effective record keeping.
The project aims to gather information from a network of
advocacy services and financial support organisations including
banks, brokers and deputies to establish the key areas of
concern that need to be addressed through training. This will
include looking at financial abuse that has occurred and the
risk factors that had been evident and avoidable. We will ensure
that equal opportunities and human rights are central to this
project, including looking at culturally specific good advocacy
practice.
For more information about the project, please email BILD's
Human Rights Development Manager, Liz Brooks at
l.brooks@bild.org.uk

Support the 'Getting it right' campaign
BILD is supporting Mencap's 'Getting it right' campaign,
launching this week in support of Learning Disability Week.
Their campaign is aimed at healthcare professionals, hospital
trusts and healthcare authorities and follows on from Mencap's
Death by indifference report (2007) and the many new cases such
as that of Kyle Flack highlighted below.
Mencap are also launching a charter developed in conjunction
with the medical Royal Colleges asking healthcare authorities to
sign up to. The charter is NOT a quality mark, or an endorsement
by Mencap. It is a commitment by the healthcare authorities to
fulfil the nine points and make sure that when people with a
learning disability are treated within their trusts, they get
the right treatment. It sets a standard for working practices
and will make health trusts accountable to people with a
learning disability, their families and carers.
Find out more about the 'Getting it right' campaign at the
Mencap website.
Inquiry into disability related harassment - let them know what
you think about hate crime
The Equality and Human Rights Commission is undertaking an
inquiry into disability-related harassment and how well this is
currently being addressed by public authorities. They want to
hear from anyone who has been harassed and from organisations
that work for and with them, including voluntary and community
sector organisations, public authorities (such as local
councils, police, housing, social services and education) and
public transport operators.
“There can be no more important human right than to live life in
safety and with security. Its absence prevents us from living
our lives to the full. And, for some, its absence has led to the
loss of life itself. For many disabled people in Britain safety
and security is a right frequently denied.”
Trevor Phillips - Promoting the safety and security of disabled
people 2009
BILD urges everyone with a view on this, particularly those with
experience of hate crime, their family carers and those who
support them, to contact the Commission and give their evidence
to the inquiry. BILD will help anyone or any organisation who
needs it to make this happen. Contact us on 01562 723010 or
enquiries@bild.org.uk
Find out more about the enquiry on the
Equality and Human Rights Commission website.
Download information about the enquiry in
easy read format.
Another death in hospital contributed to by neglect
On
Tuesday 8 June, Basildon University Hospital Trust was fined
£50,000 and ordered to pay £40,000 costs for failures in its
systems and procedures that led to the death of Kyle Flack,
pictured left, aged 20.
Kyle was a quadriplegic and had cerebral palsy and learning
disabilities and was admitted to Basildon Hospital in October
2006 after becoming ill. His bed was not fitted with the
appropriate safety bumpers despite requests from his mother.
When he was moved to a different ward, staff were not informed
that he was deaf, and his round the clock nursing care was
withdrawn. Two days after having been admitted, Kyle died from
asphyxiation after his head became stuck between the bars of his
hospital bed.
The inquest verdict on 20 July 2009 found that the circumstances
leading to his death were:
- Inadequate risk assessments
- The level of supervision had been inadequate for Kyle’s
complex needs
- There had been poor record keeping on behalf of the Trust
- Ineffective cascading of information which failed to support the
staff providing direct care to Kyle
- Insufficient training on the proper use of cot sides and
bumpers
- The cause of death was contributed to by neglect
The £50,000 fine followed the prosecution of Basildon University
Hospital for failing to address the health and safety issues.
The Health and Safety Executive’s statement identified that the
Trust had no system to assess the risk to patients from bed
rails: “Despite Kyle’s size, he was placed in a bed with adult
spacing bed rails. Had the rails been suitable for Kyle, it
would not have been physically possible for him to get his head
through any gap”
Keith Smith, BILD Chief Executive said, “Kyle’s death was
preventable and his loss is another indictment of the poor
quality of healthcare that many people with learning
disabilities continue to receive. BILD is committed to ensuring
that there is equal access to high quality person centred health
care for all people with learning disabilities. This requires a
real change in attitudes and awareness from healthcare
professionals and all those responsible for providing direct
support and care.”
There is a brief interview with Kyle's mother in this
Sky News report.
Woman forced by Court of
Protection to have treatment against her wishes
A cancer patient who has a phobia of
hospitals should be forced to undergo a life-saving operation if
necessary, a High Court judge has ruled. Sir Nicholas Wall,
sitting at the Court of Protection, ruled doctors could forcibly
sedate the 55-year-old woman, who has learning difficulties.
The woman lacked the capacity to make decisions about her
health, he said. Doctors at her NHS foundation trust had argued
she would die if her ovaries and fallopian tubes were not
removed.
Read more about the case
on the BBC website
and on the
Daily Telegraph website.
There is another article about the powers of the Court of
Protection on
the Telegraph website.
Find out more about the
Court of Protection
There is more about the Mental Capacity Act on our
human rights page
Find out about the BILD publication,
'Communication is a human right'
BILD National Positive Behaviour Support Conference 2011 - call
for workshop papers
A popular event in
the suite of events hosted by BILD, the National Positive
Behaviour Support Conference is planned for 5th and 6th May
2011, to be held in the East Midlands.
This event will follow the first International Research Event
hosted by BILD in 2010 in Dublin. It is hoped that the 2011
conference will attract a wide range of professionals and
individuals who have an interest in this field including people
with experience of using services. BILD is keen to encourage
presentations from people who have learning disabilities and
experience of using services.
The language of the event will be English
Download the Conference paper
information and application form in
Word or
PDF format.
Report of the First International Conference for Research and
practice in Positive Behaviour Support, convened by BILD
The
first International Research and Practice Conference held in
Malahide, Dublin on 6th and 7th May 2010 marked the 10th annual
behaviour support event hosted by BILD. These conferences have in the past
focused on best practice in the use of physical interventions
and the drive to create and further raise standards in training
and practice.
The conference also saw the presentation of the first BILD
Positive Behaviour Support Leadership Awards.
This conference offered delegates the opportunity to hear a
number of key speakers, including Gary La'Vigna from Los Angeles
(pictured above) and attend practice based workshops. Delivered
over two days following an established and successful format, it
proved to be a very popular event and great opportunity to hear
from acknowledged experts in the field and to gain a wealth of
knowledge, engage in debate and exchange new ideas over two busy
days.
Despite attempts by volcanic ash to disrupt the proceedings, the
event was attended by in over 150 delegates and speakers over
the two days, many using alternative modes of transport to
ensure they could attend the event.
Download
the conference report in Word format.
Positive behaviour support: defining good practice for
children and young people
This
one day national partnership event will bring together several
organisations and participants who will share expertise and
experiences.
This event is aimed at highlighting good practice in schools and
other services for children and young people with additional
needs or disabilities who also display behaviour that can be
challenging.
This event will highlight positive ways of working and discuss
how we can recognise and address poor practice. The event will
seek to explore aspects of positive behaviour support while also
discussing
- reducing the use of reactive management strategies
- the importance of policy development
- the importance of workforce support and development
- changing the operational environment and culture
This event will enable participants from a variety of service
settings to explore issues which are current for them, relate to
practice and gain further understanding of research.
Download the
event information and booking form.
BILD Code of Practice for the Use and reduction of
restrictive physical interventions
Third Edition
Around half of all people with learning disabilities and
challenging behaviour are subject to physical interventions.
High quality training, to increase staff skills and confidence
and reduce injuries among staff and people who use services, is
therefore critical.
The BILD Code of Practice provides guidance for trainers and
commissioners of training who support adults and
children with:
• a learning disability
• an autistic spectrum condition
• special educational needs
• behavioural, emotional and social difficulties
This third edition has been substantially revised and updated
and provides an important point of reference for commissioners
of services, those with responsibility for implementing
standards as well as families, carers and all who are involved
in supporting people who may be exposed to the use of
restrictive physical interventions.
Find out more or place an order
Download an order form
New Journal
of Learning Disabilities and
Offending Behaviour
Journal
of Learning Disabilities and
Offending Behaviour is a unique
journal aimed at everyone
involved in supporting people
with learning disabilities who
are involved (or in danger of
becoming involved) with the
criminal justice or forensic
health systems. BILD is
represented on its editorial
board.
Publishing quarterly, the
Journal offers information on
the latest research and policy,
as well as practical advice
about working effectively with
these groups who often fall in
the gap between mainstream
learning disability and forensic
services.
To subscribe call 01273 783720
or visit
the website for more
information.
Phoebe Caldwell wins award
for work with autism
The woman who has
transformed the lives of
more than 1,000 children and
adults with autism through
the use of body language has
been honoured by leading
politicians, academics and
scientists. She was
yesterday awarded The
Times/Sternberg Active Life
Award. “Intensive
interaction” was pioneered
by Phoebe Caldwell, 76, a
mother of five and
grandmother of nine. The
system encourages parents
and carers to study the body
language of those with
autism, then “echo” their
sounds and movements to
engage with them. Everyone
she has worked with has
shown considerable
improvements and “anyone can
learn to do it”, she says.
Read more about her award at
The Times website
BILD has a publication about Intensive Interactions,
more information available here.
Lots of challenges still to face
BILD
Chief Executive Keith Smith is interviewed in the latest edition of
the British Journal of Learning Disabilities.
Among the issues Keith raises:
"We’ve probably got the best policies we’ve ever had but that isn’t
reflected by what’s happening on the front line and in services and
supports. It is this gap between policy and practice that BILD tries
to address."
"Staff in services for people with learning disabilities are often
not being valued, not necessarily having the right training or
support and really being fairly powerless in terms of setting any
direction for their work."
"BILD hasn’t necessarily got it right in terms of making sure that
all of our trustees are supported to understand everything that’s
happening within the organisation, that is still a challenge we’re
working on."
You can read the rest for yourself by downloading
a PDF copy of the
interview.
Poetry breaking through barriers to understanding
Breaking
through Barriers is the work of David Thompson, a Wolverhampton man
who uses his poetry to tell us about his life and the role his love
of the English language, his Jamaican heritage and his cerebral
palsy have played in what he sees and what he writes.
As David says: “I have been writing poetry and plays for most of my
adult life.
“I don’t feel I need to explain what my poems are about, I like to
leave it to the reader to read them and decide what they are about
for themselves. Many of my poems do though tell the story of my
life—and I like telling stories! So what I’ve seen, what I’ve felt
is all in there.
“I just hope people will read my work and enjoy my work.”
An example of David’s poems:
My Goliath
Goliath!
I am David
Can you hear me?
I’m singing a happy song
Goliath!
I’m trying to strip you naked
Because deep in my head
I know that I am right
And you are wrong
Find out
more or place an order
The new BILD Guides - the information you need for only £2
  
We have launched five new BILD Guides, all 20 A5 pages long, all
priced at £2 each. Their aim is to give the right information on
their subject, with stories from the real experts in the subject -
people with learning disabilities - and lots of practical examples
of best practice. Written by experts in their field, some guides aim
to help people do their jobs, plan services and deliver support in
person-centred ways, others campaign to improve rights and respect
for people with learning disabilities.
BILD Guide: An introduction to personalisation
Jenny Pitts
Find out more or place an order
BILD Guide: Personalisation for community teams
Jenny Pitts
Find out more or place an order
BILD Guide: Personalisation for people and organisations delivering direct
support
Jenny Pitts
Find out more or place an order
BILD Guide: Communication is a human right
Sue Thurman
Find out more or place an order
BILD Guide: Making complaints work for people with learning disabilities
Sue Thurman
Find out more or place an order
Hate
Crime – BILD’s response to the cross-government Action Plan
The Government has published an
Action Plan for tackling hate crime.
Alan Johnson, the Home Secretary, identifies in the foreword to the Action Plan
that “hate crime is a human rights issue, a threat to community cohesion and a
rejection of our shared values. Our society is strong when our communities are
strong and communities thrive when they are united by positive values they
share. Values like fairness, respect, democracy and the rule of law.”
Unfortunately, the need for this action plan has been reinforced by the sad and
totally unnecessary deaths of Fiona and Francesca Pilkington. Their daily
harassment was hate crime, and should not be viewed as simply the ordinary
problems of community living.
Read more about BILD's response,
available to download
here.
The Government's Action Plan
can be downloaded here. There is an easy read version
you can download here.
Learning to Tell - a handbook for inclusive storytelling
Nicola Grove
To
support the development of inclusive storytelling, this new and
exciting resource from BILD has been specifically designed to help
people to find personal meaning in traditional stories, and so make
links between a legend and their own lives.
The resource aims to enable people who are marginalised through
communication and language difficulties, to develop skills in
narrative and story. The role of stories in their lives is the same
as for everyone else – stories are fun and interesting, help you to
make friends, understand the world and develop your imagination.
You can use these practical materials flexibly or integrate them
into a more formal course for accreditation on the Open College
Network course Inclusive Storytelling. With a raft of information,
games, activities and stories, and an accompanying DVD containing
video footage and PDFs of forms, this resource can help students
develop the ability to narrate, which is fundamental to human
experience.
Find out more or place an order
BILD is learning from the PAST
BILD have obtained funding from the Department of Health
for a project that will gather stories from the black and
minority ethnic communities around
good practice in advocacy and
the personalisation agenda.
We have called the project the PAST project: Personal Advocacy Story Telling. We
are aiming to set up focus groups who we hope will be able to share their
stories.
Our main aim is to share the stories which we hope will enable Black and Minority Ethnic communities,
health and social care practitioners and commissioning organisations to
learn from people's experiences of advocacy.
You can find out more on our PAST project page
in the human rights section of this website.

Hearing from the Seldom Heard - a new resource
People with learning disabilities face many barriers in being able to complain
about the services they receive.
The Hearing from the Seldom Heard project
which ran from April 2008 until March
2009 was funded by the Department of Health and undertaken by the British
Institute of Learning Disabilities. It aimed to look at how to overcome barriers
and create listening cultures within organizations to hear from those who are
seldom heard.
More details about the report, and the report's files available to download
are now available on our website.
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Learning
disability community |
Deprivation of Liberties Safeguards publications
The
Mental Capacity Act Deprivation of
Liberty safeguards (formerly known as
the Bournewood safeguards) were
introduced into the Mental Capacity Act
2005 through the Mental Health Act 2007
(which received Royal Assent in July
2007).
'The Deprivation of Liberty Safeguards
and You' and 'Deprivation of Liberty Safeguards Guide
for families and carers', as well as a
link
to easy read publications about Deprivation of Liberty Safeguards
are available
on this page
'Six Lives: the provision of public services to
people with learning disabilities'
An independent report, ‘Six Lives: the provision of
public services to people with learning disabilities’, was published 24th March
2009
by the Health Service and Local Government Ombudsmen. Focusing on investigations
into the deaths of six individuals, it calls for an urgent review of health and
social care for people with learning disabilities. BILD welcomes ‘ an honest
report’ but has doubts about how real change will be made to happen for people
with a learning disability For more information and BILD's response in full click here.
For more information and BILD's response in full
click here.
Join us now and enjoy the BILD membership advantage
Privacy policy
Policy for including other
people's news Complaint policy for fundraising activities
Acknowledgments
Some images used in this site are from the
Change Picture Bank
All trade marks are acknowledged
Please report any problems to
enquiries@bild.org.uk
British Institute of Learning Disabilities is registered in England and Wales Registered company number 2804429 Registered charity number 1019663 VAT registration number 487 8535 82 Registered office: Campion House, Green Street, Kidderminster DY10 1JL
© British Institute of Learning Disabilities 2004-10
Last updated:
29/07/2010
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Rights, Risk and Restraint - an
introduction to a human rights approach to implementing positive
behaviour support
29 September, Midlands
Download the event information and booking form

All about people

BILD's review of the past year is now available to download in
pdf format.
Download the
BILD 2008-09 annual review.

BILD Qualifications

IMCA Conversion
BILD can now offer a flexible conversion service for practising
Independent Mental Capacity Advocates (IMCAs) who have
completed their four day DoH approved training and now need to
complete the IMCA unit from the Level 3 Certificate in
Independent Advocacy.
More details on our Qualifications service
page.

BILD's 2009/2010
conferences and
events programme

Find
out more about the full range of conferences and events or to
book them online

Ethical Approaches

Ethical approaches to physical
interventions
Volume II. Changing the agenda
Edited by David Allen
The
topic of physical intervention is still hugely important: the abuse of such
interventions features all too regularly in national scandals, and people with
intellectual disabilities and other individuals with complex needs are still
dying in the UK as a result of the use of inappropriate restraint.
Through rigorous analysis of current policies and practices, careful examination
of physical interventions and abusive practices, and clear discussion of
objectives and needs for the future, this new publication offers a major
overview of key developments and current best practice in the field.
2009
ISBN 978 1 905218 11 0
Publication cost: £25
Find
out more or place an order
Visit the books section of this website

Discover what's
new in the field of learning disabilities

Do you know that each month BILD publishes its Current Awareness
Service (CAS), a service that keeps readers up to date with
everything new in learning disabilities?
See the CAS pages for more information.

BILD Publications:

Down’s syndrome
and dementia-
A resource for carers and support staff
Second Edition
Karen Dodd, Vicky Turk and Michelle Christmas
2009
ISBN 978 1 905218 08 0
£20
Find out
more or place an order

Supporting parents and carers
- A trainer’s guide to
positive behaviour strategies
Sharon Paley, Chris Stirling and Mark Wakefield
2008
ISBN 978 1 905218 07 3
£25 (inc. VAT)
Find
out more or place an order
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