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Saturday 16 November 2019
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Useful resources

Pilot programme helps new mums

New mothers with learning difficulties have benefited from a pilot programme that helped them learn to care for and interact with their babies, an evaluation by University of Bristol experts has found.

As well as meaning the mothers who took part were better-equipped to look after their children and reported changes including increased confidence, better life choices and more positive engagement with services, the additional support they received through the programme also provided potential cost savings for local authorities on child safeguarding, care proceedings and provision.

Download the parent pioneers pilot programme evaluation 

Download 'Inclusive support for parents with a learning disability' by Mencap

Find out more about working together with parents network from The University of Bristol

Guidance on legislation for childcare

Barrister Steve Broach has written a guide for parents of children with disabilities based on the childcare laws which currently exist in England. The guide outlines the rights of children, the childcare that they are entitled to, and the reasonable adjustments which have to be provided by local councils to allow them to attend childcare services.

Find out more 

Helping pave the way to an ordinary life for children with extraordinary needs...

'Paving the way' is a new website launched this week by the Challenging Behaviour Foundation and the Council for Disabled Children which aims to provide families, professionals, staff, and commissioners with information about how to reduce challenging behaviour and to improve the wellbeing of children with learning disabilities.

Find out more information

New problem-solving toolkit for parents

This toolkit aims to support people with disabilities and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services.

This toolkit aims to unpick these problems and to develop effective strategies for resolving them. The toolkit was compiled by Professor Luke Clements, Cerebra Professor of Law and Social Justice so offers an in-depth look at family’s rights but presents it in a clear “jargon busted” format.  

Download the toolkit >

KIDS launches recources for the SEN reforms

KIDS have launched a new range of resources to support families and carers of disabled children and young people to help them navigate the reforms to Special Educational Needs and Disability provision.

The full range of resources is available to view here 

Guide to Supported Parenting

The Scottish Commission for Learning Disability has produced a practical and strategic guide to developing a supported parenting approach for parents with learning disabilities. The Guide: 

  • Outlines important issues inherent in developing a supported parenting approach
  • Highlights key factors of a supported parenting approach
  • Outlines good practice in supported parenting


Download a copy >

New Cerebra guide on transition

Cerebra, the charity for children with neurological conditions, has published a new guide for parents and carers on ‘Transition to Adulthood’ which aims to help parents of young people with disabilities and/or special educational needs  manage their child's transition into adulthood so that the social care, education and health needs of their child are met and sustained throughout this process and into the young person's adult life.  

Find out more on the Cerebra website.


Rare Chromosome disorders - Practical Guides for Families 

Unique have been collecting information to help families affected by rare chromosome disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Unique does its best to keep abreast of changing information and to review its published guides as needed. 

Find out more on their website.

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Working Together with Parents Network

The network supports professionals working with parents with learning difficulties and learning disabilities and their children through: A UK-wide Network for professionals sharing positive practice; Working at policy level, they have a national taskforce; a parents’ network co-ordinated by CHANGE.

The network is supported by a wide range of organisations including the Norah Fry Research Centre, CHANGE, Family Action, the Scottish Consortium for Learning Disabilities and Learning Disability Wales.

Find out more on the Network's website.

There are country specific websites for Scotland and Wales. 


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Good practice guidance on working with parents with a learning disability

Good practice guidance, published by the Department of Health in 2007, including a summary of relevant legislation and policy, on how adult and children's services should work together to improve support to parents with a learning disability and their children.

Download the report from their website.

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Voiceability Parents Booklet


Written for, and by, parents who have learning disabilities, this booklet tells you what happens if Children's Services feel your child is at risk of harm.

The booklet explains in easy to understand words and pictures:

  • Who normally makes decisions about child protection
  • What happens when Children’s Services get involved
  • The Child Protection Process
  • What happens at different meetings
  • Emergency Protection Orders
  • What happens in court 
  • Different legal orders
  • Adoption and Fostering processes

Download the booklet from the Voiceability website. 

Social Care Institute of Excellence research briefing 14: Helping parents in their role as parents

The topic of this briefing is parents with intellectual or learning disabilities and the support they may need to help them as parents. It summarises the policy, guidance and research literature on how parents with learning disabilities may be supported in their efforts to provide the best possible type of parenting for their children.

Find out more on the SCIE website

Disability, Pregnancy & Parenthood International

Disability, Pregnancy & Parenthood International is a UK national information charity on disability and parenthood and the publisher of the international journal on disabled parenting, 'Disability, Pregnancy & Parenthoood international'.

In November 2011 they published 'Supporting parents with learning disabilities and difficulties: a starting point', which brings together details of the resources available to professionals working to support parents with a learning disability. It also provides a brief introduction to the main issues faced by parents with learning disabilities.

Find out more on their website.

Baby activities

“Growing up with Down’s syndrome”, a series of films which demonstrate activities for babies and toddlers

Movimento Down, Brazil, have produced 12 films which show activities for babies and toddlers guided by physiotherapist Alexandra Wakahara. The short films describe activities and supports for children from birth to 3 months, 6 to 9 months, 9 to 12 months and for children older than 12 months.

Movimento Down have supported the video’s translation into English so that even more people can watch the films.  More >

Parenting Toolkit - helping Partnership Boards meet the needs of people with learning difficulties

A Toolkit to help Partnership Boards look at the support and services that are offered to parents with learning difficulties, helping them to check how good they are. You can read the toolkit on screen or download it as a PDF.

Find out more on the London Network of Parents with Learning Difficulties website

Starting Primary School: For parents who have learning disabilities

'Starting Primary School’ is a new DVD produced by SCLD for parents with learning disabilities who have pre-school age children. It gives them first hand practical advice to help them navigate their children’s transition to primary school.

Watch the video online

School funding changes and children with SEN in mainstream schools: a briefing for parents
This briefing from the Council for Disabled Children provides information about the school funding changes and explains what you should do if a school or local authority proposes to change the special educational provision for your child.

Read the briefing from the CDC 

Disabled children In the Picture

Scope’s “In the Picture” campaign is about encouraging publishers, illustrators and writers to embrace diversity – so that disabled children, are included alongside other in illustrations and story lines in books for young readers. The “In the Picture” website has lots of resources for children and professionals including stories, images, fact sheets and a reading list of picture books that feature disabled characters.

Find out more about the campaign

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In Control

In Control is a national charity. Their mission is to create a fairer society where everyone needing additional support has the right, responsibility and freedom to control that support.

They have a lot of information and resources about individual budgets and self-directed support.

They have pages of fact sheets here and audio versions here.

Find out more on their website. 

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Think local, act personal

Think local, act personal is a group of over 30 national partners that are committed to real change in adult social care. Their goal is for people to have better lives through more choice and control over the support they use: often referred to as "personalisation". They represent a wide range of organisations - from people who use services and carers, to the providers of services and representatives from central and local government.

Find out more on their website.

One of their publications, Best Practice in Direct Payment Support: A guide for commissioners, describes how to commission really good direct payments support by showcasing examples of innovative practice.

Download from the Think local, act personal website.

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SCIE Report 20: Personalisation - a rough guide

This publication aims to tell the story so far about the personalisation of adult social care services. It is intended to set out our current understanding of personalisation and its implementation, exploring what personalisation is, where the idea came from and placing the transformation of adult social care in the wider public service reform agenda.

Find out more on the SCIE website.

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A Positive approach to risk and personlisation - a framework

Commissioned by the West Midlands Joint Improvement Partnership, this provides a framework for Councils in shifting the balance away from risk aversion towards supported positive risk taking. The aim is to share risk between the individual using services (regardless of funding source), their family, carers, professional care staff, third parties and the Council.

Download the report.

Carers and personalisation study by the SPRU

The Social Policy Research Unit examined how current English adult social care practice balances the interests of service users and family carers, in assessment, planning, on-going management and reviews of personal budgets, particularly when budget-holders have cognitive or communication impairments. The study examined senior local authority perspectives, everyday practice by frontline staff and experiences of service users and carers.

According to the study, carers’ involvement in assessments, support planning and reviews for personal budgets (PBs) lacks clarity and consistency. In most councils surveyed, service user assessment guidance reminded practitioners to ask about carers’ ‘willingness’ and ‘ability’ to provide support. However, there was little guidance on carers’ roles in support planning or on-going PB management.

Download the report summary from the SPRU website

Service users, not social workers, should lead support planning 

A report from the Groundswell Partnership says good support planning means people need to have plans which they can evolve at their own pace, and to be meaningful, the process of planning needs to help people explore how to achieve the things that are important to them and to stay safe at the same time. Unfortunately, such planning is often considered time intensive, expensive and unrealistic in the current financial climate. The report puts forward a planning process, called Empower and Enable, which is a people led approach to support planning.

Download the report here  

PBS Webinar
Positive Behaviour Support in Residential Care webinar


BILD ran a webinar for Action for Children on 'Positive Behaviour Support in Residential Care: Making good decisions within the legal framework' by Action for Children and the Centre for the Advance of Positive Behaviour Support (CAPBS). This is now available to watch here >

The webinar was commissioned by the Children's Homes Quality Standards Partnership and delivered by Phil Howell, BILD Accreditation Scheme Manager and Sarah Leitch, Development Manager for the CAPBS.


"The simple existence of a Behaviour Support Plan is not enough"

In the Positive Behavioural Support Competencies Framework for the UK, there is a central role for a document called a Behaviour Support Plan (or BSP), says Professor Richard Hastings in his blog.

This document is the culmination of the process of detailed assessment, including work with people whose behaviour is being described as challenging and their carers.

The PBS competencies framework is very clear about all of the work that needs to go on around the BSP to ensure that PBS is going to be done properly. Thus, BSPs are important but they are not the whole of PBS. 

Find out why >

Positive Approaches: Reducing Restrictive Practices in Social Care

This learning resource aims to provide an understanding of how to work using positive and proactive approaches and reduce the use of restrictive practices in social care. 

It is relevant to all of those who provide social care and support to adults and children and young people.

The focus of the resource is on enabling and ensuring best practice using examples and scenarios for illustration. It can be used in supervision; as part of induction; training sessions; appraisals and to inform policy; protocols; audit; quality assurance and commissioning.  

Find out more information 

Excellent accessible and useful resources from the Massachusetts Department of Mental Health available here >

The safety tools are frequently used in CAPBS' PBS programmes to help people develop more collaborative Behaviour Support Plans with children and young people.

Assessing Behaviors

Anyone who has a copy of John Clements' book, 'Assessing Behaviors regarded as problematic for people with developmental disabilities', Clements, JC and Martin, JKP (you can get it on Amazon) or who was lucky enough to attend  any of his training, will know how empathic his approach to assessment and working with people that provide direct support was. 

John has now sadly retired but has given permission for his assessment document to be shared -  he is happy for  people to change or update it if they find it useful.

Download the resource


Tizard have created an Easy Read booklet to explain what Positive Behaviour support is and why it should be included in service specifications. The booklet includes information on Behaviour that challenges services and the reasons why people exhibit challenging behaviour, as well as what a support plan is and how it can be implemented into an organisation.

Download the resource 

Department for Education advice

Advice from the Department for Education published April 2012, aimed at governing bodies, head teachers and school staff in all schools:

Use of reasonable force:provides clarification on the use of force to help school staff feel more confident about using this power when they feel it is necessary and to make clear the responsibilities of head teachers and governing bodies in respect of this power.

Screening, searching and confiscation: explains the use of the power to search pupils without consent. It also explains the powers schools have to seize and then confiscate items found during a search. It includes statutory guidance which schools must have regard to.

Challenging Behaviour Foundation

Services for children and young people with learning disabilities who display challenging behaviour - Well matched and skilled staff is aimed at commissioners of children’s services and was written by Dr Sarah Bernard, in collaboration with the Challenging Behaviour National Strategy Group.

An accompanying resource for commissioners of adult’s services Services for adults with learning disabilities who display challenging behaviour - Well matched and skilled staff was written by Dr Peter Baker, in collaboration with the Challenging Behaviour National Strategy Group.

There are a range of other resources for families and support workers on the Challenging Behaviour Foundation website. 

Positive Behavioural Support: a learning resource

The learning resource is based on a pilot training programme developed for NHS Education for Scotland (NES) by Edinburgh Napier University, The Learning Disability Managed Care Network and The Forensic Network School of Forensic Mental Health. The resource aims to equip participants with knowledge in positive behaviour support (PBS) and to help participants begin to identify how they could use PBS in their practice, to support positive behavioural change to improve the lives of people with a learning disability.

Download the resource

Positive Behaviour Support and Active Support

'Positive Behaviour Support and Active Support: Essential elements for achieving real change in services for people whose behaviour is described as challenging' is a report produced by The Avenues Group, United Response and the Tizard Centre. Its purpose is to demonstrate the extent to which Active Support underpins the effective implementation of Positive Behaviour Support and the role it can play in supporting people with challenging behaviour.

Download the resource

Positive Behavioural Support Competence Framework

The UK PBS Competence Framework provides a detailed framework of the things that you need to know and the things that you need to do when delivering best practice PBS to persons with intellectual disabilities and behaviours that challenge.

Download the resource

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Physical Restraint Direction Paper -
Supporting people to achieve dignity without restraints

A policy direction document for the Australian State of Victoria outlining a move away from use of physical restraints.

"Prohibition on the use of physical restraint on people with a disability who are receiving a disability service provided by a disability service provider."

Download the document.

See also the BILD Positive Behaviour Resources page on this website.


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New bereavement and loss learning resource pack
PAMIS’ Bereavement and Loss Learning Resource Pack consists of two separate units and a DVD. The first Unit focusses on supporting bereaved people with profound and multiple learning disabilities (PMLD). The second unit is about supporting bereaved parents and carers who have cared for a person(s) with profound and multiple learning disabilities.

Find out more and download the Bereavement and Loss learning resource pack.
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Involve Me: Involving people with profound disabilties in decisions that affect their lives

Involve Me aims to increase the involvement of people with profound and multiple learning disabilities (PMLD) in decision making and consultation. The resource is the result of a three year project, supported by the Renton Foundation and run by Mencap in partnership with the British Institute of Learning Disabilities (BILD).

Find out more and download the Practical Guide to Involving People on the Mencap website


Understanding the lives and needs of people with profound and multiple learning disabilities in Lambeth

Family carers in Lambeth said that people with PMLD were not getting the support and services they needed to have a good life. They took this concern to Lambeth learning disability partnership board. The board agreed that a piece of collaborative work, focusing on the needs of people with PMLD in the area, would be a valuable step in improving the lives of people with PMLD and their families in Lambeth.

Download a copy of the report from the PMLD Network website 


Working with People who have a Learning Disability and Complex needs – the essentials

This learning resource has been developed by Edinburgh Napier University, The University of Stirling and The Learning Disability Managed Care Network. The resource aims to offer workers supporting people with a learning disability and complex needs opportunities to develop their knowledge, skills and values in ways that maximise the involvement of service users and families and increase health and wellbeing. To promote the provision of support that maximises quality of life, choice, opportunity and capability.

Download the resource


Bag Books - multi-sensory stories

Bag Books is the only organisation in the world publishing multi-sensory books specifically for people with learning disabilities. Each year they reach around 19,000 children and adults throughout the UK with Profound and Multiple Learning Disabilities, Severe Learning Disabilities or severely affected by Autistic Spectrum Disorder.

Their main activities are:

  • the design and production of a range of multi-sensory books
  • providing specialist multi-sensory storytellers
  • training others (parents, carers, librarians and teachers) in multi-sensory storytelling technique

Find out more about Bag Books

Raising our Sights guides

Mencap and the PMLD Network have produced a series of how-to guides and films to help local areas meet the needs of people with profound and multiple learning disabilities (PMLD), funded by the Department of Health.

Download the guides from the Mencap website 

PAMIS - A Better Life

A publication to celebrate the 20th birthday of PAMIS. This booklet showcases the services, projects, campaigning work and research that PAMIS has carried out over the last two decades and continues to do so. The booklet highlights, through the many colourful images and accompanying text, how people with complex needs are valued as both individuals and the contribution they make to the community.

The publication is available to download from the PAMIS website 

If you listen you will hear us

"If you listen you will hear us" 

"If you listen you will hear us" is an innovative film which explores effective communication measures for people with profound and multiple learning difficulties. It is important to have consistent staff and treat each person as unique, a staff member from the film says, as well as using a wide range of approaches and activities to explore how the individual communicates best. Measures to improve communication shown in the film include using a communication passport and sensory story telling, which helps to detect how people are feeling. The film was commissioned by Leicestershire learning disability partnership boards.

Watch the film here 

Fire Safety

Fire Safety

A ‘Fire 999’ DVD in which all the cast have a learning disability, developed by Devon & Somerset Fire & Rescue Service is proving a useful resource in delivering consistent and accurate fire safety training. The DVD is divided into four short sections to encourage interactive Q&A sessions throughout. It explains what to do in a fire and more importantly how to prevent a fire occurring in the first place, as well as what to expect from a home safety visit from the Fire Service. 

For further information on the DVD please email Dave Evans on devans@dsfire.gov.uk.

No smoke without fire

Speak Up Self Advocacy group have created a range of easy read resources to help protect people against the hazards of fire. The aptly named 'No smoke without fire' resources include a 'socket overload calculator' which demonstrates how easy it is to overload power sockets and a downloadable booklet which explains how fires are started, what to do in the case of a fire and how to spot fire hazards.  

Find out more information 

STAR Toolkit - online safety and ASD

The Childnet STAR Toolkit is a free online resource that offers practical advice and teaching activities to help secondary schools explore internet safety with young people with autism spectrum disorders.  The Toolkit is free to download online and the teaching activity ideas are provided in Word so you can edit and adapt them to suit your learners.  

Find out more information 

Safesurfing - Internet Safety

The internet is useful in many ways, however sometimes there can be risks and dangers, such as stolen personal data and cyber bullying. People with a learning disability are especially at risk of being hurt, so to tackle this, the SafeSurfing project created its own internet safety training. This training aims to support people with a learning disability to know what personal information they should share online, how to protect their personal data, and surf the web safely. The training is broken down into the following modules:

  • How to use the internet safely and protect my personal data
  • Dangers of the internet
  • How to stay safe using the internet and apps
  • Facebook and browser safety
  • Summary of what we have learnt  


Find out more information. 

A Local Experience of National Concern

The aim of producing this report was to contribute to the debate about how extremely vulnerable people with learning disabilities, autistic spectrum disorder and mental health needs or challenging behaviours can be better supported and safeguarded by providing information, advice and support to their families. 

Download the report

My keep safe checklist

The dark nights are with us again, so we need to be extra careful when we go out and about. Building Bridges Training has devised a 2 page checklist of safety tips to think about before leaving your home – get in touch with them if you would like a free PDF copy through their website >

Challenging the media and staying safe online

The Foundation for People with Learning Disabilities are calling for a change to the language used about people with learning disabilities and the way they are represented in the media, in order to tackle the increase in bullying, harassment and hate crime. They have also produced two guides to provide tips and advice to help people with learning disabilities stay safe, ‘Staying Safe on Social Media’ and ‘Staying Safe Out and About’. The Foundation has also developed a guide for broadcasters to help them improve how they represent people with learning disabilities in the media. 

Find out more information

Effective Supervision in Social Care

Care Council app and online training to enhance care worker knowledge
The Care Council for Wales has launched an app, Safeguarding – Test Your Knowledge, to help staff and volunteers in adult and children’s care services check their safeguarding know-how. They've also launched an online training course Effective Supervision in Social Care, an e-learning training package for new and aspiring social care managers that aims to help them effectively supervise staff. Find out more

Safeguarding Adults: The role of health services

These Department of Health documents remind health services of their duties to safeguard adults. They assist NHS commissioners, health service managers and practitioners in preventing and responding to neglect and abuse, focusing on patients in the most vulnerable situations. The documents include good practice principles and examples.

Find out more on the Department of Health website

Hidden in Plain Sight: Patient safety and Southern Health NHS Foundation Trust 

George Julian from the Justice for LB campaign team has posted a blog post analysing the Southern Health NHS Foundation Trust's Annual Report 2014/15 section on quality.

In a review of the performance for clinical quality which stated "Serious incidents requiring investigation (SIRIs): Incidents resulting in serious harm not common. 396 out of a total of 12499 incidents", George responded by writing "Not common? Who is defining not common? What parameters are being used here? There has been no change in the number of incidents resulting in serious harm in four years – that isn’t exactly great evidence of Katrina’s passionate quality team being able to demonstrate any progress." 

Read George's blog 

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Children with learning disabilities at risk of sexual exploitation

Children with learning disabilities are more vulnerable to sexual exploitation than other children, facing additional barriers to their protection and to receiving support, new research published this week has revealed. 

This issue is particularly hidden because few children with learning disabilities meet high thresholds for support from services. There is also limited awareness that young people with learning disabilities are sexually exploited.

The report, ‘Unprotected, Overprotected: meeting the needs of young people with learning disabilities who experience, or are at risk of sexual exploitation', was commissioned by Comic Relief, and undertaken by Barnardo’s, The Children’s Society, BILD, Paradigm Research and Coventry University.

Find out more and download the report.

Safer Relationships Toolkit

Options for Life worked in partnership with BILD and a grant from Sandwell Early Help Innovation Fund to create a ‘Safer Relationships Toolkit’.

There are seven individual sessions aimed to support adults with learning disabilities to keep themselves safe in the relationships they make. Each session contains a plan with discussion questions, scenarios and group activities. This plan can be used as a guide and adapted to each individual’s needs or interests.

The sessions can be carried out in a small groups or 1-1 setting as appropriate, and can be part of a series of workshops or one off for a specific topic. Sessions available:

  • Family
  • Friends
  • Identity theft
  • Money Management
  • People you don’t know
  • Sex and Relationships
  • Social Media


Download the toolkit >

It’s not on the radar: The hidden diversity of children and young people at risk of sexual exploitation in England

In 2015, a series of four roundtables was held with experts in the fields of Child Sexual Exploitation (CSE) and diversity to discuss how the two areas connect. The round tables focused on boys and young men, lesbian, gay, bisexual, trans and questioning young people, disability and ethnicity and faith.

Bringing together the findings of the roundtable events and additional research, the report, ‘It’s not on the radar’, explores how perceptions of sexual exploitation can affect the identification of and response to CSE.  

Download the report >

Framework launched to support work with harmful sexual behaviours

NSPCC, in collaboration with Research in Practice, youth justice agencies and council leaders, have developed a new online framework to support a shared understanding, consistent approaches and improved practice when dealing with children and young people displaying harmful sexual behaviour.

The framework contains a set of auditing tools and standards for local authorities to use to assess current service provision and identify where improvements are needed.  

Find out more information. 

Help people with disabilities find love!

Fitzroy Love4Life aim to end loneliness and help people with disabilities find love and lifelong relationships.

'Love is stronger' a message from Fitzroy's short but striking video. 

Watch the video and find out more.

Supporting people with learning disabilities to develop sexual and romantic relationships

Despite laws, policies and guidance it is clear that people with learning disabilities continue to face barriers to building and developing relationships.

In order to understand more about the reasons for this and what can be done to support people to develop relationships, the National Development Team for Inclusion have conducted a short review of the evidence and information available. In particular, the report focuses on the following two key questions:

  • What are the barriers or challenges to people with learning disabilities developing sexual/romantic relationships? 
  • What works to support people with learning disabilities develop sexual/romantic relationships?  


Download the report.

Scope’s Romance Classics #EndTheAwkward

Scope have released swoonsome recreations of iconic Mills & Boon book covers – starring people with disabilities. 

Find out more information. 

A to Z of sex and disability

The A to Z of sex and disability is a raunchy and light-hearted look at the loves and lusts of people with disabilities in Britain today. Too often people assume that people with disabilities don’t have fulfilling sex lives and relationships. Nothing could be further from the truth! It’s time to End the Awkward and get it on.

Find out more information. 

People with learning disabilities want to find love too

Although people with disabilities may want to be in a relationship, they are often faced with barriers and challenges that prevent them finding what many take for granted. But specialised dating agencies can help to provide the support they need to meet new people and find romance.

Read the article. 

"I am married. I am in love. I also happen to have a learning disability - this shouldn't matter"

"As soon as I set eyes on Helen, I knew she was the one for me. I have a learning disability and never thought I could have a relationship with someone. I proposed to Helen after two and a half years together, and we got married in 2014.

I always dreamt about getting married, so my wish came true in the end. I tell this story as I want other people with a learning disability to realise they can have relationships as well. There are not enough role models out there, and I want to show that my disability doesn't stop me from living the life I choose. 

Read the article.

Easy-read guide to contraception 

An easy-read guide to methods of contraception and sexual health has been created for people who have a learning disability. The guide, with information shown mostly as pictures, has been developed by organisations in Plymouth for those working with people who have a learning disability to help initial discussions. 

To find out more email info@eddystone.org.uk

Anti-Bullying Alliance guide in 'Tackling homophobic, biphobic and transphobic bullying for disabled children and young people and those with special educational needs' 

Pupils who have a disability or have learning difficulties are significantly more likely to experience homophobic bullying than their mainstream classmates, according to a charity which has produced a guide for teachers on tackling the problem.

Download the guide. 

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Information about sexuality, safe sex and contraception for people with learning disabilities from the Family Planning Association.

All the resources in this range of materials - including the award-winning 'All About Us' CD or DVD - can be used by teachers and other professionals working with people with learning disabilities, as well as by their parents and carers. 'All about us' and 'Talking together' ... books can be used by people with learning disabilities, either with support or on their own.

Find out more on the Family Planning Assciation website.

Relationships, sexual health and parenting resource for young people with autism spectrum disorder

This extensive resource, produced by Learning and Teaching Scotland aims to help those involved in delivering sexual health and relationships education to those with an autism spectrum disorder by giving autism-specific advice aimed primarily, but not exclusively, at mainstream secondary school staff to encourage innovative, individualised and creative teaching and giving guidance on the different approaches that can be taken to support individuals with an autism spectrum disorder. 

Find out more and download it from their website.

Useful resources on LGBT identities, gender, sexuality, sexual health and relationships

This resource includes an extensive range of information relating to LGBT identities, gender, sexuality, sexual health and relationships including:

  • Easy read and accessible resources
  • General LGBT guides, resources and services
  • Information and support for parents, carers and family members
  • Further reading and resources for professionals
  • Other resources


All the resources in this range of materials is provided by George Burrows from LGBT Health and Wellbeing. 

Download the LGBT resources. 

Connect talk to us about relationships and safe sex

Connect is a comprehensive sexual health service, for people of all ages who have learning difficulties or Autistic Spectrum Disorder (ASD). It is held at The Wolverton Centre at Kingston Hospital which is a dedicated sexual health centre. 

Connect offers testing and treatment for STIs, HIV testing, cervical smear tests, free condoms, pregnancy testing and more. 

For further information download the leaflet >

To book an appointment, download the referral form >

Child sexual exploitation: support for 16- and 17-year-olds must improve

A report by the Children's Society, 'Old enough to know better?', found that many sex crimes against older teenagers in England and Wales in the past year went “unreported and unpunished” because victims were afraid they wouldn’t be believed by the justice system, feared going to court or did not consider it worth reporting.

Social workers have been urged to improve their support for 16- and 17-year-olds affected by child sexual exploitation in a week where new figures showed huge under-reporting of sexual offences among this age group. 

More information is available on the website.

Download The Children's Society report.

School support

Guide to tackle homophobic, biphobic and transphobic and bullying for young people with disabilities and those with special educational need

Pupils who have a disability or have learning difficulties are significantly more likely to experience homophobic bullying than their mainstream classmates, according to a charity which has produced a guide for teachers on tackling the problem.

The Anti-Bullying Alliance's new guide, 'Tackling homophobic, biphobic and transphobic, bullying for disabled children and young people and those with special educational needs' recommends that:

  • Teachers must take reports of bullying seriously. Pupils often say that they are not believed when they report bullying 
  • Teachers deliver sex and relationships education that mentions both homosexual sex and also sex among people with disabilities   
  • Teachers discuss being LGBT in school, as well as being LGBT and with a disability 

Download the Anti-Bullying Alliance > 



Report shows people are still being let down 5 years on from Winterbourne 

Five years on from the Winterbourne View scandal, a Royal College of Nursing report shows people with learning disabilities are still being let down. The report shows that since 2010 the learning disability nursing workforce in England has been cut by a third. That’s a total of 1,700 posts, a third of which are senior nurses.  More > 

Download the RCN report >


Download the Easy Read version of the RCN report > 


The size and structure of the adult social care sector and workforce in England, 2011

Produced by Skills for Care, this report  aims to provide a comprehensive overview of the size and structure of the adult social care sector and workforce in England as at 2010.

It shows, among much else, that the number of jobs in adult social care in England in 2010 was estimated at 1.77 million and is projected to grow by between 24% and 82% between 2010 and 2025.

Download the report.

Skills for Care adult social care Management Induction Standards

The Skills for Care adult social care Manager Induction Standards (MIS) are aimed at those new to management as well as those new in post who have previously managed other care services. They are also intended for aspiring or potential managers to help support their development, although evidence of having met some of the standards will require actual management experience.

The standards can to be used in a wide range of settings, including people who manage their own services and micro-employers, as well as small, medium and large organisations across the public, private and voluntary sectors.

Although these MIS are not mandatory in the same way as the Common Induction Standards, they are definitely a measure of good practice and Skills for Care recommend that new managers should normally have demonstrated all the knowledge requirements of the recommended core standards within six months of taking up a management role.

Find out more and download the Standards from the Skills for Care website.

Health and Safety Executive  www.hse.gov.uk


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The Transition Information Network

The Transition Information Network (TIN) is an alliance of organisations and individuals who come together with one common aim; to improve disabled young people's experience of transition to adulthood. TIN provides information about transition through its website, magazine, e-bulletin and seminars. It is free to become a member of TIN.

Find out more on their website.

Young people in transition: guide

New health and social care guidance from NICE – the National Institute for Health and Care Excellence – aims to improve support for young people as they move from children's to adults' health and care services. The guideline committee, which included young people, found that support can often be patchy and inconsistent. The new guideline aims to ensure that young people are supported and involved in decisions before, during and after transition.  

More on the NICE guideline >

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Preparing for adulthood

The Preparing for Adulthood programme is delivered by a partnership between the National Development Team for inclusion, the Council for Disabled Children and Helen Sanderson Associates.

The partnership brings together a wide range of expertise and experience of working with young people and families at a local and national level and across government, to support young people into adulthood with paid employment, good health, independent living, community inclusion.

Find out more on their website.

2015 report on the needs of young persons with intellectual disabilities transitioning to adulthood 

The ''Young Adults with Intellectual Disability' (YAID) project issued by Bitlis and Inclusion Europe, aims to fill the gap created by the lack of services provided during the transition to adulthood by identifying the main problems faced by young adults with intellectual disabilities and their families. The report, 'A compass to develop services for families with disability', highlights the desire for independence for young people with learning disabilities and support services for their families. 

Download the report issued by YAID 

Ofstead: Progression post-16 for learners with learning difficulties and/or disabilities

This survey, published in August 2011, evaluates the arrangements for transition from school and the provision in post-16 settings for learners with learning difficulties and/or disabilities up to the age of 25. Through visits to 32 providers and the completion of 111 detailed case studies, inspectors assessed the effectiveness of provision in enabling learners to develop greater independence, and progress to further learning or open or supported employment.

Download from the Ofstead website.
Read an Ofstead overview of this study

Getting a Life

The Getting a Life programme ran from April 2008 to the end of March 2011, as part of the Valuing People Now employment work.

It was set up to show what needs to happen so that young people with a severe learning disability achieve paid employment and full lives when they leave education. 

The central programme team has now disbanded, but the people who have been involved in the local projects are continuing their work to improve employment opportunities for young people with learning disabilities in each area.

Find out more on the Getting a Life website.

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Pathways to getting a life

This document brought together what was  learned about transition
from Valuing People and Valuing People Now during the past 10 years, and in particular from Getting a Life. It sets out clearly the key things that need to happen to support young people to move into adulthood, with the information, experiences, confidence and skills they need to fulfil their aspirations, enjoy equal opportunities and have good lives.

Download Pathways to getting a life.

Info packs on the SEND Pathfinder Programme

The Pathfinder Support Team have published the second set of information packs on the SEND Pathfinder Programme. The packs include evidence of good practice from across Pathfinders including case studies and helpful resources.

Each pack pulls together resources from across the pathfinder programme to cover the six principal themes pathfinders have been working on: Preparing for adulthood; 0 – 25 coordinated assessment and EHC plans; Personal budgets; Local offer; Joint commissioning; and Participation and engagement with children, young people, parents and carers.

Download the packs from their website

SEN and disability best practice and information

Preparing for Adulthood produce a monthly e-bulletin that contains updates from the PfA programme, information about the wider SEND programme, and updates from work in pathfinders and other local areas. Each issue also focuses on one of the four PfA outcomes: Paid Employment, Independent Living, Good Health and Community Inclusion.

Read the Preparing for Adulthood monthly e-bulletin

Whizz-Kidz launches free smartphone app

Designed with disabled children, young people and their families in mind, this allows users to view mobility equipment available from Whizz-Kidz, discover additional Whizz-Kidz’s services, such as wheelchair skills training, and find out how they can get involved in fundraising and volunteering.

Find out more about the app on the Whizz-Kidz website

Mencap Best Practice Guide – Young People and Social Action

This guide is for anyone who works with young people or who provides services for them, as well as young people and their friends, families and carers. This guide demonstrates the difference young people with a learning disability can make to their own lives and to the communities they live in. It provides tips, case studies and resources to help you understand what you can do to support them. The guide will help those who work with young people to see similar positive change in the groups they support, their communities and organisations.

Download Mencap's Best Practice Guide from their website

Children's Views on Restraint (2012)

In 2004 Ofsted asked children for their views about physical restraint and published their last report about this. Children have raised concerns about restraint in consultations they have held about other things since then, and they decided they should carry out a follow-up consultation to check what children now think about restraint. So they consulted children again this year to find out their views and concerns about restraint. This report gives their views in 2012.

Download the report from the Ofsted website

Emotional Wellbeing

YoungMinds is the UK’s leading charity committed to improving the emotional wellbeing and mental health of children and young people. The site provides helpful information for young people, parents and professionals. Young people who think they may have mental health problems or want to know more about the topic will find useful sections on, for example, rights, being heard and getting support, as well as information on common mental health issues.

Find out more on the YoungMinds website

Disabled children In the Picture

Scope’s “In the Picture” campaign is about encouraging publishers, illustrators and writers to
embrace diversity – so that disabled children, are included alongside other in illustrations and story lines in books for young readers. The “In the Picture” website has lots of resources for children and professionals including stories, images, fact sheets and a reading list of picture books that feature disabled characters.

Find out more about the campaign on Scope's website

New Resources: A Pathway for Children

The Challenging Behaviour Foundation has been working with the National Development Team for inclusion to develop three new resources setting out a vision of future local pathways for children with learning disabilities and/or autism whose behaviours may challenge.  

Find out more information. 

A practical guide to learning and development for personal assistants 

Skills for Care have produced a guide to learning and development for personal assistants. There is an interactive guide answering questions about learning new skills, informs on a range of issues in employing a personal assistant. It also includes learning topics that may be useful to your own development, as an employer.  Download the guide

Visit the Skill for Care's website

See Skill for Care's Frequently Asked Questions on funding to pay for learning and development.

HEE responds to review on developing the future care workforce but not enough dealing with learning disability nursing

Health Education England (HEE) has published its response to Shape of Caring review ‘Raising the Bar’, which explored how nurse and care assistant and training could be improved given their expanding and changing roles.  Download the response >

VODG launch 'Thought Leadership' report about rising to the social care workforce challenge

The social care sector will need to fill around 400,000 jobs by 2035. In the light of this reality, how can providers create a competitive edge in local labour markets and transform the sector into a career of choice? 

Following a summit held with over 100 chief executives and senior directors in the sector alongside Skills for Care and Charityworks, VODG have launched a new report rising to these challenges.  

Find out more information. 

Remploy online support chat

Remploy offer an online chat service to use for inquiries about employment and what to expect during the recruitment process. They also offer an online job search as well as interview tips and what to do to impress an employer. 

Visit the website here. 

Why I love my nursing job: a personal look at the profession

Seven nurses working in different sectors share their thoughts on what makes a career as a nurse so special. One of the nurses is Linda Phillips, a community learning disability nurse in Llanelli, Wales.

 “I have always had an interest in working with people with a learning disability – even at school I used to volunteer at a youth club helping children with learning disabilities. Today I manage a caseload of people with learning disabilities who have additional health needs. I had a lady who was deaf because of wax in her ears; she was terrified of hospitals. With desensitisation, she was able to go into hospital and have an op – it made a huge difference to her.” 

Find out more information. 

Opening job opportunities to people with a learning disability

The Director of the NHS Learning Disability Employment Programme, Lela Kogbara, has introduced a new series of blogs which aims to share perspectives on employing people with a learning disability in the NHS. 

"Over the next few months we’ll be posting blogs on a wide range of topics from employers, carers, and people with a learning disability who are employed in the NHS, with the aim of sharing best practice and helping others find solutions to employing people within their organisations. We look forward to sharing their stories with you", said Lela.  

Find out more information. 

New guide launched to help adults with learning disabilities find employment 

Families sometimes do not know how to go about helping their family member with learning disabilities into paid work. This guide, produced by the Foundation for People with Learning Disabilities and the National Valuing Families Forum, offers valuable information to help families think about what they can do to support their family member. 

Download the Getting a job guide here.

If you can recommend any information about people with learning disabilities that would be useful to others, please let us know at enquiries@bild.org.uk


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