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BILD - All About People
Friday 19 October 2018
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Peaceful, pain free and dignified: palliative and end of life care for people on the autism spectrum.

A guide for social care practitioners

Jill Ferguson and Val Laurie

This book tells the poignant story of Stephane’s care during the final three years of his life and how the staff who supported him, the medical team, his family and friends worked together to care for him both in life and death.

This practice guide explains sensitively how Stephane’s physical, psychological, social and spiritual needs were met, taking into account the impact of his autism on his understanding and response to his cancer.

The authors, Jill Ferguson and Val Laurie, work for Scottish Autism and have written this inspiring book to share their learning so that other teams can deliver peaceful, pain free and dignified end of life care to individuals with autism.

“There are many gems in this book; simple examples of what can be done to help not only the patient with autism but also his family and autistic friends.” 

“This new book is unique...not just in its focus on autism but also in its user-friendly way of providing comprehensive information.”

“Palliative care staff supporting patients who have learning disabilities or autism should definitely recommend this book to the social care staff involved, and could themselves learn much from reading it as well.” 
Irene Tuffrey-Wijne, ehospice 

Other BILD books about autism

  • Choice and control book cover Choice and control the autism friendly waySue Hatton with contributions from Tracey Jones, Alex Calver and Linda Woodcock This book clearly explains the path that needs to be taken in order to work effectively with individuals on the autism spectrum. Beginning by being autism aware, learning to become autism friendly and on to being able...
  • conv in autism cover 418x604 Conversations in autismBy Paula Johnston and Sue Hatton. The insights and experiences that Paula shares, and Sue comments on, help to unlock some of the mystery that surrounds people with an autistic spectrum condition who do not speak, or who are labelled as having a severe learning disability.
  • GAP happiness cover GAP: autism, happiness and wellbeingEdited by Glenys Jones and Elisabeth Hurley This book focuses on promoting happiness and wellbeing and features papers from people with autism, family members and professionals.
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