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Friday 13 December 2019
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News for the learning disability community for October to December 2011

20 December:
  Survey of local authority commissioners of advocacy for people with learning disabilities  The Improving Health and Lives: Learning Disabilities Observatory is working on a new project about the advocacy services provided for adults with learning disabilities in England, and how this links to health and wellbeing. As part of the project they are carrying out a survey of commissioners of advocacy for people with learning disabilities. The commissioner survey can be found here: http://www.surveymonkey.com/s/RPAdvocacyservicesforadultswithLD

The survey for advocacy and self advocacy organisations is here: http://www.surveymonkey.com/s/advocacyforadultswithLD


16 December:  Winterbourne View workers appear in court charged with neglect and ill treatment  Ten people charged with neglecting and mistreating patients at a private hospital in Hambrook have appeared in court for the first time. The seven men and three women, who are aged between 21 and 58, all worked at Winterbourne View Hospital which was the subject of a BBC Panorama programme in May. They face a total of 40 charges against five victims. No pleas were entered and all 10 were granted bail. They will appear at Bristol Crown Court on February 9.

More here:

14 December: 
Adult social care and health to be integrated in Scotland  Adult social care and health will be integrated in Scotland to help tackle delayed discharges from hospital and cost-shunting between councils and the NHS, under plans outlined yesterday by the country's government. Councils and NHS boards will be required to set up health and social care partnerships, with pooled budgets, and for which they will be jointly accountably, said health secretary Nicola Sturgeon.

More here: http://bit.ly/tuDHhh

8 December:
  Survey reveals plight of families with disabled children  Nearly three-quarters of families with disabled children have experienced anxiety, depression or family breakdown, according to the latest research by Contact a Family.

A survey of over 1,100 families found almost half had asked their GP for medication or counselling, while 65% said they felt isolated frequently or all of the time. One in five said feelings of isolation had even destroyed their family or marriage.

More here: http://bit.ly/uH4yFg

dla protest image

1 December 2011: Government reverses its decision to stop the mobility component of Disability Living Allowance for people in residential care 

Maria Miller, Minister for Disabled People, has today announced that the Government will no longer be cutting the mobility component of Disability Living Allowance for people in residential care.

More here: http://bit.ly/vb2KyM

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30 November:  More funding for CQC inspections  Community Care reports that the Department of Health has granted the Care Quality Commission's request for greater funding to finance annual inspections of adult care services and others it regulates. DH funding for the regulator will increase by £10m in 2012-13 to help the organisation recruit sufficient inspectors to fulfil the annual inspections target.

More here: http://bit.ly/rP7s5e


29 November:  Winterbourne View - 10 charged   Ten people have been charged in connection with the ill treatment and neglect of patients at the Winterbourne View hospital near Bristol. The charges come after secret filming by the BBC's Panorama at Winterbourne View, which has since been closed. The 10 people face a total of 40 charges against four patients under the Mental Capacity Act. Seven men and three women, all from the local area, are due to appear before Bristol magistrates on 15 December.

More here: http://bbc.in/sWctkl

23November:  Learning disabled man's human rights 'ignored' by council and NHS  A council and NHS trust have been slammed for "ignoring the basic human rights" of a man with Down's syndrome who was detained unnecessarily in hospital for months and then moved into inappropriate locked accommodation until his death.

Mr J, who was then living independently with his wife, was admitted to hospital for a short assessment after a deterioration in his health, where he was diagnosed with dementia and epilepsy. But though declared fit for discharge, he was kept in hospital for five months, and then moved with his wife into a self-contained flat in an older people's care home, which was kept locked for safety reasons.

Though this was supposed to be a temporary arrangement, they stayed there for 10 months until Mr J became ill with a chest infection and was admitted to hospital, where he died, aged 53.

More here: http://bit.ly/tpwRKs 

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20 November: The Queen's Hidden Cousins  The true story of Nerissa and Katherine Bowes-Lyon, the Queen's cousins who were born with learning disabilities and spent most of their lives all but forgotten in an institution. Also about life in specialist long stay hospitals and how those who moved out could blossom in better surroundings - you can still see it online at Channel 4 on Demand.

More here: http://bit.ly/slT7tE

18 November:  Court ruling leaves disabled patients at risk  Mencap took the Parliamentary and Health Service Ombudsman to judicial review, on 16 November, to challenge the legality of her approach to complaints of disability discrimination in the NHS. However, the judge ruled that the Ombudsman’s approach is lawful. Mencap has warned that this ruling will continue to allow discrimination against people with a learning disability to go unchecked and lead to further unnecessary deaths.

More here: http://bit.ly/smU5EH


16 November:  Conduct code and training standards for social care workers  Health secretary announces plans to develop code of conduct and minimum training standards for adult social care workers in England. Department of Health has charged Skills for Care and Skills for Health with leading the development of the code and the standards. They are due to submit recommendations to ministers by September 2012 ahead of the creation of a voluntary register for England's adult social care workers during 2013.

More here: http://bit.ly/sMpEa5

disability factsheet cover image

14 November:  Personal independence payment - Disability Alliance Factsheet F60  The Disability Alliance has produced a fact sheet on PIP (Personal Independence Payment) planned to replace working age DLA (Disability Living Allowance) from April 2013. It is based on their knowledge to date and will continue to be updated.

More here: http://bit.ly/tXwYEd

High Court image

11 November:  Council's cuts in care unlawful  The families of two autistic men have won a High Court case over cuts to social care by Isle of Wight Council. A judge ruled the council's new eligibility criteria were unlawful and should be quashed by the court. Under the plans only vulnerable adults assessed as critical or at risk of becoming critical would qualify.

More on the BBC website: http://bbc.in/tWph0M

11 November:  Improving access to social care for adults with autism  Guide from the Social Care Institute of Excellence (SCIE) explains how services can improve access to care for people with autism and meet the requirements of the Department of Health's Autism Strategy.

Find out more on the SCIE website: http://bit.ly/sX5g4V

10 November:  Key deprivation of liberty safeguards judgement explained   Important deprivation of liberty safeguards judgement was published today, under which the Court of Appeal overturned an earlier Court of Protection ruling that a man with severe learning and physical disabilities, P, was deprived of his liberty in a residential setting. The appeal was brought by the local authority involved, Cheshire West and Chester Council. Mental Health Alliance Dols lead Roger Hargreaves appeal explains the significance of the judgement.

More here: http://bit.ly/uY3yJP


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4 November: Spend on people with learning difficulties as % of NHS spend  Some statistical information in these parlimentary answers to Learning Disability Coalition sponsored questions:

3 November:  Lord Low: government should not remove DLA mobility benefit  Removing mobility benefits for disabled people living in residential care would be "a serious step backwards for disability rights", according to Lord Low's review of the issue.

The Welfare Reform Bill has proposed the government stop paying mobility benefits to 78,000 people currently living in residential care. It has already passed through the House of Commons and is currently being debated in the House of Lords.

Read more here: http://lowreview.org.uk/

Community Care logo

October 23: BILD Conference featured in Community Care podcast   BILD's Annual Conference, 'What does it take to get things right', is featured in the Community Care podcast - a podcast is an audio report that you can listen to. The report of the issues raised at the conference, and interviews with some of the participants, begins at 4 minutes 30 seconds in.

Listen here.

October 19: Councils on track for 2013 target of personal budgets for all  Ninety-seven per cent of authorities say they are on course to meet the target, which applies to users of ongoing council-funded support, found a survey by the Association of Directors of Adult Social Services. The survey found 40% of councils already had 60% of users on personal budgets and three athorities were on course to reach the 100% mark by the end of 2011-12. The target was set in last year's government vision for adult social care.

More here: http://bit.ly/nvC113

October 12: Safety guidance for social care staff. Skills for Care have published new guidance for employers and individuals and a range of examples of policies and procedures, assessment tools, training frameworks, ways of responding to violent incidents, and information for workers.

More here:  http://www.skillsforcare.org.uk/combatingviolence/

October 10: Every Disabled Child Matters Campaign urges Government to monitor levels, spend and quality of short break services to ensure continued success. They have published ’Raised Expectations: parental experiences of short breaks’ a report that examines parents with disabled children’s experiences of short breaks between 2007 – 2011.

More here: http://bit.ly/p7vn9W

October 10: Specialist disability employment programmes – public consultation. Department of Work and Pensions' consultation seeks views on the recommendations in Liz Sayce's independent report on specialist disability employment programmes, "Getting in, staying in and getting on." It applies to England, Wales and Scotland.

More here: http://tinyurl.com/6l9uuub

BILD 40 years document cover

October 9: Celebrating forty years of BILD's work. To celebrate BILD's 40th birthday at our annual conference last Friday, we've produced this look back at the last 40 years: the work and the progress. There's still lots left to do, and lots of people ready to do it, particularly people with learning disabilities and their family carers. BILD's journey goes on

Download a copy: http://www.bit.ly/qHKHE9

October 3: Panorama: All Work and Low Pay Panorama discovers that many British workers are still being paid much less than the law states particularly in the care work sector. Research by King's College London seen by BBC Panorama suggests that somewhere between 150,000 and 200,000 care workers over the age of 21 may be earning less than the statutory minimum, now £6.08 an hour for adults.

More here: http://bbc.in/mXSPef 

29 September: Your rights at work A film made with a group of people with learning disabilities by the Disability Law Service. It shows what people with learning disabilities can do if they have problems at work. See the film here, there is also an easy read guide to download as well: http://www.dls.org.uk/ple/

29 September: Skills for Care's Autism Skills and Knowledge List The Autism skills and knowledge list has been developed by Skills for Care, Skills for Health and the National Autistic Society to help enhance awareness of autism and improve skills among workers in generic health and social care services. The list enables individual workers, or services and teams, to work out whether they have the knowledge and skills needed to provide a good service to people who have autism. Also be useful for people who are arranging or providing training to workers.

More here: http://bit.ly/pbyWhj

Involve Me cover

25 September: Involving people with profound disabiltiies in decisions that affect their lives Fantastic launch of Involve Me at City Hall, London on Friday. Funded by the Renton Foundation and managed by Mencap and BILD, with an evaluation of the project from the Foundation for People with Learning disabilities, the Involve Me materials give lots of creative and practical advice on how to work to involve people with PMLD in decisions about things that affect their lives.


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