Human rights and people with learning disabilitiesHuman rights are to the basic rights and freedoms to which we are all entitled. The recent report ‘A Life Like Any Other?’ showed that people with learning disabilities do not often have their human rights respected. BILD believe that people with learning disabilities and their families have, and should be able to enjoy on an equal basis, the same human rights as everyone else. As an organisation we are working towards adopting a human rights based approach in all our work, based on this important principle. To reinforce our strong commitment, we have a Development Manager for Human Rights, Liz Brooks. BILD are committed to work in this area because we want people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect. Care home boss spared prison in abuse caseA CARE home manager with 23 years
nursing experience has been given a suspended jail sentence after
she physically used the arms of vulnerable residents with learning
disabilities as "weapons" to punish another person in her care.
Court of Appeal upholds landmark decision for disabled people (David Allen v Royal Bank of Scotland)The Court of Appeal on 20 November
2009 confirmed that the Royal Bank of Scotland had breached the
Disability Discrimination Act by failing to provide access to its
Sheffield branch for wheelchair users. Advocacy and personalisation in black and minority ethnic communities - let's learn from the PAST
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| l | recognising that people with learning disabilities have the same rights as everyone else |
| l | supporting friendships, relationships and community participation |
| l | producing accessible information with people with learning disbilities involved as advisers |
| l |
access to independent advocacy |
| l | staff training provided by people with learning disabilities |
In summary, Andrew argued for
“.....a national culture change, to recognise that people with
learning disabilities have the same rights as everyone else. It’s
not a question of being nice to “unfortunate people”. We must
recognise their rights as equal citizens.”
The themes identified were taken forward by the rest of the
conference.
Roisin Cavanagh of the British Institute of Human Rights challenged the whole conference to test their
knowledge about human rights and the way it could be used to better
support people with learning disabilities. Delegates worked in small
groups and then shared their thinking with everyone. This was a very
interactive session and allowed a wide variety of ideas and views to
be discussed. Roisin continued this approach in her later workshop
on key rights.
Tim Gunning of the Equality and Human Rights Commission briefly outlined
the work of the Commission in this area and their skills, knowledge
and information available to be used for support.
Linda Ward of the Norah Fry Research Centre shared her work with parents
with learning disabilities. She framed this in a human rights
perspective, outlining the challenges faced by parents needing the
right support but where they may not be given the chance to develop
their parenting skills.
All delegates had the opportunity to attend two workshops. These
included:
| l | Implementing in practice Rights and Quality Support – Meryl Cuzak (Merseycare NHS Trust) was able to share their experiences as the Department of Health pilot site for healthcare, human rights and learning disabilities. |
| l | Challenging Behaviour, seclusion, restraint and human rights – BILD’s Sharon Paley explored the use of such practices and ways to reduce their use. |
| l | Ethnicity and learning disabilities, - Mark Wakefield and Bridget Fisher focused on the discrimination and disadvantages experienced by people with learning disabilities from black and minority ethnic communities. |
| l |
Healthcare for all – everyone’s human right – this provided an overview of health policy provided by Helen Mycock ( Valuing People) and then provided a parent’s view from Ros Jarvis (Independent trainer) and the experiences of an individual, Kylie Jarvis (Independent Trainer) |
The conference was successful
in providing a challenging start to BILD’s work in this area, but
also in identifying a wide range of issues, solutions and practical
ways forward for delegates.
It was apparent that key to making the human rights agenda work for
people with learning disabilities is providing information in a wide
range of accessible formats, and providing opportunities for all
involved to have opportunities to learn, think, share and take
positive action.
Keith Smith
Chief Executive, British Institute of learning Disabilities
Build for the Future contributes to Joint
Parliamentary Report on Human Rights

Build for the Future is a group of over thirty
people with learning disabilities drawn from seven advocacy
organisations:
- Somerset Advocacy
- Taking Part, Shropshire
- Our Way, Worcestershire
- Talk back, Buckinghamshire
- Options for Life, Walsall
- Culture Speak Out, Coventry
- Speaking Up for Action, Sheffield
They work with BILD to ensure that our work is rooted in the real life experiences of people with learning disabilities.

When BILD was invited to make a submission to the
Joint Committee on Human Rights, Build for the Future was an
important part of process. They discussed the issues raised by the Joint
Committee and wanted their comments to be included
in the submission. Their views on human rights and people with
learning disabilities can be seen in full in their
submission to the Joint
Parliamentary Committee.
BILD's submission to the Joint Committee
can be seen here.
Deprivation of Liberties Safeguards publications
The
Mental Capacity Act Deprivation of
Liberty safeguards (formerly known as
the Bournewood safeguards) were
introduced into the Mental Capacity Act
2005 through the Mental Health Act 2007
(which received Royal Assent in July
2007).
The MCA DOL safeguards apply to anyone:
- aged 18 and over who suffers from a mental disorder or
disability of the mind, such as
dementia or a profound learning
disability
- who lacks the capacity to give
informed consent to the arrangements
made for their care and / or treatment
and
- for whom deprivation of liberty
(within the meaning of Article 5 of the ECHR) is considered after an independent
assessment to be necessary in their best
interests to protect them from harm.
The safeguards cover patients in
hospitals, and people in care homes
registered under the Care Standards Act
2000, whether placed under public or
private arrangements
The aim is to implement the safeguards
in April 2009. The safeguards are
designed to protect the interests of an
extremely vulnerable group of service
users and to:
- ensure people can be given the care they need in the least restrictive regimes
- prevent arbitrary decisions that deprive vulnerable people of their liberty
- provide safeguards for vulnerable people
- provide them with rights of challenge against unlawful detention
- avoid unnecessary bureaucracy.
There are two publications, funded by the Department of Health and produced by BILD, which you can download in .pdf format: The Deprivation of Liberty Safeguards and You and Deprivation of Liberty Safeguards Guide for families and carers.
There is a separate section in this website about Deprivation of Liberty Safeguards, (DOLS).
Parliament debates the human rights of people with learning disabilities
Andrew
Dismore MP, seen here on the right, with Mark Gray, BILD's Chair,
spoke at BILD's Human Rights conference
"Human rights matter most to
vulnerable people, and adults with learning disabilities are among
the most vulnerable people in the UK." With these words Andrew Dismore MP began the parliamentary debate on The Joint Committee on
Human Rights Report 'A Life Like Any Other?' on 5th March 2009.
The Joint Committee, to which both BILD and Build for the Future
made submissions, identified that the human rights of people with
learning disabilities are violated every day. The report drew
attention to a widening gap between Government policies and the
daily lives of people with learning disabilities who are more likely
to experience social exclusion, poverty and isolation. In addition,
recent investigations and audits of services have exposed neglect,
abuse, discrimination and indifference.
BILD welcomed the parliamentary debate and the range of issues
discussed with the single intention of identifying how the Human
Rights Act could be made to improve the lives of people with
learning disabilities. We particularly welcomed the strong emphasis
that was made on people being able to be a real part of their local
communities, having friendships and relationships and being able to
contribute. We also were glad to see that MPs discussed the
importance of access to independent advocacy, especially for people
with complex needs.
The full minutes of the debate are available at
Hansard Online.
This links to the first of eight pages of debate, see 'next section'
hidden away in the bottom left hand corner for the link to the rest
of the report.
'

A Life Like Any Other?
Human Rights of
Adults with Learning
Disabilities'
Joint Parliamentary Committee on
Human Rights
Volume One - The Committee report
Volume Two - The written evidence

Human Rights in Healthcare
Department of Health
The Human Rights Act 1998
Office of Public Sector Information

Guide to the Human Rights Act for people with learning disabilities
Ministry of Justice
The BILD Human Rights Factsheet
As a Word document
As a pdf document
The BILD Advocacy Factsheet
As a Word document
As a pdf document

The Deprivation of Liberty Safeguards and You
The Deprivation of Liberty Safeguards for families and carers

Human Rights - a guide for disabled people
British Institute of Human Rights

Ours to own - Your Human Rights
Easy Read publication from the Equalities and Human Rights Commission
Deprivation of Liberty Safeguards Code of Practice
Department of Health

Deprivation of Liberty Safeguards - easy read
Also available, expanded easy read and video version, use same link
Department of Health

Brief guide to the Mental Capacity Act
The Mental Capacity Act 2005 affects the approximately two million people in England and Wales who are unable to make some or all decisions that affects their lives.
This BILD guide provides case studies to demonstrate key points of the Act and practical examples to explain how the Act might be applied in a real-life situation.
Download the order form.
Other websites
The British Institute of Human Rights
Department of Health websites:
Mental Capacity Act
Deprivation of Liberty Safeguards
Page ref: 'human rights home page' Owned by: enquiries@bild.org.uk Last updated: 02/03/2010
BILD have obtained funding from
the Department of Health for a project to gather stories from the
Black and Minority Ethnic communities around good practice in
advocacy and the personalisation agenda.
