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Syndromes

These are websites which BILD consider to be useful sources of information although we do not necessarily endorse views or specific content, or the degree of accessibility of the information.

Batten Disease Family Association
http://www.bdfa-uk.org.uk/

The Cri-du-Chat Syndrome Support Group

www.cridchat.u-net.com

Down’s Syndrome Association
www.downs-syndrome.org.uk

Down’s Syndrome Scotland
www.dsscotland.org.uk

The Fragile X Society
www.fragilex.org.uk

Foetal Alcohol Syndrome Aware
www.fasaware.co.uk

Climb: The National Information and Advice Centre for Metabolic Diseases
www.climb.org.uk/

Prader-Willi Syndrome Association
www.pwsa.co.uk

The Williams Syndrome Foundation
www.williams-syndrome.org.uk/

Tourette Syndrome Information and Support Site
www.tourettes-disorder.com/ 

Tourette Syndrome (UK) Association
www.tsa.org.uk

Cerebral Palsy Source
www.cerebralpalsysource.com/

Fetal Alcohol and Drug Unit
http://depts.washington.edu/fadu/

 

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