Bridging the Divide at Transition:

what happens for young people with learning difficulties and their families?

Pauline Heslop, Robina Mallett, Ken Simons and Linda Ward

2002            ISBN 1 904082 08 4            Price £12.00

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‘The report is well presented and the extensive use of quotes from interviews offers the reader valuable insight into the problems facing young people and their families. This study is essential reading for all practitioners involved in transition planning.’ Learning Disability Practice

Based on a survey of 283 families, interviews with parents and young people with learning disabilities, and visits to forward-thinking services, this report covers:

• the need for transition planning
• moving between children’s and adult services
• what affects a young person’s move towards independence
• what young people and their families say would improve the transition experience
• examples of innovative practice

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BILD Guide: An introduction to personalisation

Jenny Pitts

2009            ISBN 978 1 905218 14 1         Price: £2

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This guide is an introduction to personalisation and what it means for people with a learning disability, family carers and workers in services. It explores the background to personalisation, the key principles and how self directed support works in different areas. The examples of personalisation in practice show how people have used self directed support to improve their quality of life.

 

BILD Guide: Personalisation for community teams

Jenny Pitts

2009            ISBN 978 1 905218 15 8         Price: £2

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This guide sets out what the key issues around personalisation are for staff working in learning disability community services – social work teams and multi disciplinary specialist services. It describes some of the new ways of working and poses some questions for consideration and discussion. The guide explores how these roles will change as people are offered more choice and control over their support arrangements.

 

BILD Guide: Personalisation for people and organisations delivering direct support

Jenny Pitts

2009            ISBN 978 1 905218 16 5         Price: £2

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Services and organisations will increasingly need to respond to individuals and their families wanting more say about how they are supported. This guide describes some of these changes and looks at some examples of how the role of organisations and people who provide support may need to change as people with
a learning disability exercise more choice and control in their lives.

Considered Choices:

the new genetics, prenatal testing and people with learning disabilities

Linda Ward
      
2001            ISBN 1 902519 62 0            Price £16.00

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Debates about genetics and prenatal testing rarely include the views of those most affected by them: disabled people and their families. This book redresses the balance, covering:

• the views of parents
• the views of a consultant
• a disabled person's perspective
• ethical issues
• an international overview of the commercial and other interested parties

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Disability Arts Against Exclusion:

people with learning difficulties and their performing arts

Dan Goodley and Michele Moore

2002            ISBN 1 904082 36 X            Price £16.00

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The authors make a powerful case for the benefits of people with learning disabilities taking part in performing arts, with particular emphasis on drama and dance.

Examples of good practice are set alongside a review of disability arts in the wider context of debates about inclusion and human rights.

A well-researched resource for professionals, carers and parents who want to know how participation in the arts can promote – or hinder – the promotion of personal choice and control for people with learning disabilities.

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Easy Guide to the Human Rights Act 1998

Andrea Hughes and Phil Coombs

2001            ISBN 1 902519 75 2            Price £10.00

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An essential guide for staff, carers and parents, the Easy Guide to the Human Rights Act outlines the key elements of the Act and shows how they can be applied to protect the legal rights of people with learning disabilities.

The guide, written with the help of people with learning disabilities, includes real life stories and examples to illustrate various abuses of human rights, as well as suggestions for good practice and contact details for more information.

A free poster accompanying the guide lists the human rights and abuses, and can be used in day centres, residential homes, offices and clubs.. 

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Elaine Hardie and Liz Brooks

2009       ISBN 1 905218 06 6    Price £10.00

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The Mental Capacity Act 2005 affects people who are unable to make some or all of their own decisions. It supports the rights of people with a learning disability to make their own decisions and provides rules for when other people can make decisions on their behalf. Written in plain English, the booklet aims to:

● explain the key points of the Mental Capacity Act 2005
● explain what some of the choices and decisions might be
● help people plan ahead
● help supporters to understand choice and decision-making

A free poster is included

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Exploring Sexual and Social Understanding

an illustrated pack designed for working with people with learning disabilities

Edited by Karen Dodd, Keith Jones, Heather Liddiard and James Stroud

2007            ISBN 1 905218 01 X            Price £25.00

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This illustrated pack has been developed to provide a flexible visual resource that can be used to assess sexual knowledge and capacity to consent of people with learning disabilities.

It will help to teach and discuss appropriate social and sexual behaviour.

The pack includes a CD-ROM containing 178 pictures which can be arranged into sequences to form stories that can represent conventional, unconventional, legal and illegal social and sexual activities. The stories can be created either by the person with learning disabilities or by the professional working with them.
The pack also includes a capacity assessment form to help determine whether the person with learning disabilities has the capacity to consent to a specific sexual relationship.

The materials have been evaluated with a range of people with learning

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Financial Decision-Making

guidance for supporting financial decision-making by people with learning disabilities

Irenka Suto, Isabel Clare and Anthony Holland

2007             ISBN 1 904082 96 3        Price £20.00

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Choice and independence are central to improving the lives of people with learning
disabilities. This guide explores ways of enabling people with learning disabilities to have as much control as possible in managing their money.

The guide explains how to carry out an assessment of financial decision-making capacity to help in finding the balance between respect and autonomy and protection from abuse and exploitation. It also offers ways to help develop decision-making abilities and maximise choice and independence.

The guide focuses on the particular needs of adults with learning disabilities. It may be useful for managers of residential homes, health and social care practitioners such as care managers, clinical psychologists, psychiatrists, nurses and social workers and to others concerned with the financial well-being of men and women with learning disabilities. It may also be helpful in supporting other vulnerable men and women.

The guide includes:

● background information about money management among adults with learning
disabilities, set in the context of current and proposed UK legislation
● a framework for assessing financial decision-making abilities
● explanations of key findings in research into financial decision-making
● advice about maximising choice and independence in money management
● case studies that illustrate and clarify the principles and situations discussed
● two worked examples of how the framework can be used to assess and maximise financial decision-making in everyday situations

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Journey to Independence:

how to run your life with direct payments

Stacey Gramlich, Gordon McBride, Natasha Snelham and Brian Myers, with Val Williams and Ken Simons

2003            ISBN 1 904082 65 3            Price £25.00

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‘As usual with publications from BILD, the pack is very well laid out and accessible, without being patronising in any way.’  Care and Health

This accessible pack and CD shows people with learning disabilities how to get a direct payment, and find and employ a personal assistant.

Based on research by self advocates from Swindon People First, and their own experiences of direct payments, the pack covers:

• thinking about your life

• what a personal assistant is

• how to plan for your assessment

• how to find a PA

• choosing your PA

• being a good boss

Using plain English, group activities and games, and resources, including sample interview questions and contracts, the pack provides everything a person with a learning disability or self advocacy group might need to get them started on the road to direct payments.

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Journey to Independence:

what self advocates tell us about direct payments

Stacey Gramlich, Gordon McBride, Natasha Snelham and Brian Myers, with Val Williams and Ken Simons

2002            ISBN 1 904082 64 5            Price £12.00

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‘This is a great book. Buy it!’  Community Living
‘I thoroughly enjoyed this report.’  Learning Disability Practice

Very few people with learning difficulties get direct payments, yet many see it as an important part of their journey to independence.

This report, based on a joint research project from Swindon People First and the Norah Fry Research Centre, looks at the reasons for this, and ways of improving take up of direct payments. It examines:

• the best ways to support people with learning difficulties to get direct payments

• how people with learning difficulties have gained from direct payments

• the barriers and problems that people face

• the best ways of giving information, and publicising direct payments

Researchers from the Norah Fry Research Centre examined the wider context, including implications for policy makers. 

Journey to Independence is a call to action for policy makers, commissioners, partnership boards and others who are committed to independence for people with learning difficulties.

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Partnerships for Training

an easy access pack for developing equal training partnerships with people with a learning disability

Jane Jones and Christopher Robertson

2007            ISBN 1 905218 02 8             Price £25.00

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This easy access pack is for experienced trainers and people with learning disabilities who want to work together to do training as equal partners.

The pack is made up of a workbook and a DVD-ROM. The workbook includes sections on developing an equal partnership, planning and practising training sessions, and reviewing how actual training went. The DVD-ROM contains
video clips illustrating good and bad practice and has been designed to make it easy to use.

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Skills for Support

Lisa Ponting, Kerrie Ford, Philippa Rudge and Val Williams

Coming soon

This pack will help people with learning disabilities gain more control over their lives by being in control of good support. It contains materials that can be used flexibly to help personal assistants learn how to provide good support and is based on recent research. For use in groups or in informal one-to-one situations at home, it covers five key skills areas:

● showing respect
● giving choices
● being friendly
● giving good advice
● supporting someone to speak up

The pack provides rich material for discussion and debate. It consists of:

● five easy read photo story booklets which show good and bad practice
● a DVD containing real-life video clips of personal assistants working with people with learning disabilities, and role plays of ‘scenes from the past’
● an ideas booklet that offers suggestions for how to use the photo story books and DVD The pack will be of interest to:
● direct payment support organisations
● agencies that train supporters for people with learning disabilities
● colleges and universities providing courses for front-line support staff

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Social and Personal Relationships:

policy and good practice guidelines for staff working with adults with learning disabilities

2000            ISBN 1 902519 74 4            Price £18.00

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Clear guidance for staff supporting adults with learning disabilities in their social and personal relationships.

Section One includes a policy framework, which outlines the rights and responsibilities of staff, carers, relatives and adults with learning disabilities. Section two covers practical guidance on how a policy can be used by staff in various settings. Among the topics covered are: the law, consent, personal and sexual relationships between staff and service users, sexual orientation, contraception and sexual abuse.

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A Voice of Their Own

A toolbox of ideas and information for non-instructed advocacy

Annie Lawton

2006            ISBN 1 904082 98 X           Price £16.00

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This toolbox is a place to come for ideas, suggestions and contact details to help you ensure your advocacy partner has a voice, is listened to and is taken seriously by others who can bring about change.

It is particularly useful for anyone advocating for a person with high support needs by which we mean anyone who does not communicate using words, has significant barriers to communication and/or complex physical, health or emotional needs and requires lots of extra support as a result. This could include people who have a learning disability with sight or hearing difficulties or those with a mental illness or autism.

There is no one ‘right’ way to advocate. The important thing is to collect together a number of different tools and use these in whatever combination will produce the required results. The information in this book is organised so that it is easy to find what you want.

A Voice of Their Own was awarded five stars by Community Care reviewer Matt Dore: "Annie Lawton has pieced together a collection of ideas and resources which will stand any person in the learning disabilities field in good stead, whether professional, parent, relative or friend..."

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Last updated: 27/07/2010