Karen Dodd, Vicky Turk and Michelle Christmas

2005            ISBN 1 904082 92 0            Price £12.00

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This illustrated booklet describes the dementia process and helps people with a learning disability understand what happens when a friend gets dementia. It explains the changes that may occur and tells about people who can help. Large print text.

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The Journey of Life:

Karen Dodd, Vicky Turk and Michelle Christmas

2005            ISBN 1 904082 91 2            Price £10.00

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This booklet is designed to help people with a learning disability who need support to understand the stages of life and what to expect as part of the normal life cycle. The illustrations follow a man with Down’s syndrome as he changes from being a baby to becoming old. Large print text.

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Cancer and People with Learning Disabilities:

James Hogg, John Northfield and John Turnbull

2001            ISBN 1 902519 73 6            Price £12.00

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‘A “must have” for all professionals and organisations who are charged with responsibility for delivering care to children and adults who have a learning disability.’ Journal of Learning Disabilities

Cancer is a key health issue but we know very little about cancer in people with learning disabilities. This BILD report, commissioned by the Department of Health, explores:

• What are the potential genetic, environmental and personal risks that people with learning disabilities may be exposed to?
• How do we make health education programmes accessible?
• How can people with learning disabilities best benefit from the complex cancer treatments now available?
• How can we improve rates of early diagnosis, as people with learning disabilities may not be able to report their symptoms?

Part one reviews the scientific literature. Part two includes the views of people who plan and commission cancer services, as well as health care practitioners. Together they provide an important review of current knowledge and practice.

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Down’s Syndrome and Dementia:

Karen Dodd, Vicky Turk and Michelle Christmas

2009            ISBN 978 1 905218 08 0             Price £20.00

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A resource book for family carers, staff and other professionals to help them care more effectively for people with Down’s syndrome and dementia.

The book focuses on practical day to day issues, including:

• supporting the person with Down’s syndrome and dementia to maintain skills and independence in every way and for as long as possible
• treating treatable conditions
• understanding and responding appropriately to changes in behaviour during the early, middle and late stages of dementia
• providing emotional reassurance for carers
• improving the confidence of carers to look after individuals
• identifying local supports and resources
• being open to the problems that may arise and help with coping
• tips and solutions

The book has been revised to take into account further developments both in working with people with learning disabilities in general and specific developments for people who develop dementia.

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Down Syndrome and Health Care

Vee Prasher and Beryl Smith

2002            ISBN 1 902519 20 5            Price £14.00

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This book provides practical information for staff, families and other carers on the important health issues for adults with Down syndrome. Specific medical issues are covered including:

• vision
• hearing
• heart and circulation
• respiratory conditions
• skin conditions
• skeleton, joints and dental care

The book also covers personal and social issues and includes a resources section with sources of further support and information.

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HoNOS-LD:

Ashok Roy, Helen Matthews, David Martin and Vanessa Fowler

2002            ISBN 1 902519 93 0            Price £35.00

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A set of outcome scales for use in day-to-day work to measure changes in people with learning disabilities who have additional mental health needs.

Each pack contains instructions for use, 10 outcome sheets, a report on the development and effectiveness of HoNOS-LD and optional software to enable users to collect and analyse data.

HoNOS-LD can be used by a range of professionals including psychiatrists, psychologists and behavioural support workers. It does not replace diagnostic tools, but provides a useful way of assessing global changes in people undergoing treatment.

The tool was developed by the Royal College of Psychiatrists’ Faculty of Learning Disability and the British Psychological Society’s Centre for Clinical Outcomes Research and Effectiveness, in consultation with people with learning disabilities.

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Managing Continence

Alice Bradley

Three books designed to help all those concerned with managing continence.

Everybody Needs Toilets:

Alice Bradley, Mary Buchanan, John Dawson and Agnes Forsyth

2006            ISBN 1 904082 83 1            Price £8.00

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This illustrated easy-to-read booklet is for people with a learning disability who find it difficult to talk about any problems they have with going to the toilet. It describes how people can keep healthy by looking after their bladder and bowels. It also deals with the problems they sometimes have with going to the toilet and the people who can help.

Relatively little has been written about continence in relation to people with a learning disability. Everybody Needs Toilets has been produced in partnership with people who have a learning disability to rectify this situation. The issues covered are those which the people involved felt were most pertinent to their needs and those of others. They should provide stimulus for discussion.

The easy-read format gives messages which are clear, easy to understand and directly relevant. Many illustrations enhance the text.

The book is designed to be used by people with a learning disability with, where necessary, the support of family carers or support workers who are expected to customise the book to suit their own circumstances.

The book is accompanied by a workbook for support workers and carers, Helping People with Learning Disabilities Manage Continence and a reader for managers, Supporting Continence Management.

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Helping People with Learning Disabilities Manage Continence:

Alice Bradley with Loretto Lambe

2006            ISBN 1 904082 82 3            Price £12.00

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Continence is one of those things we seldom think about if we don’t have a problem, but which assumes massive proportions if we do. Incontinence is very much a taboo subject and relatively little has been written about it in relation to people with learning disabilities. This workbook has been produced in partnership with people with learning disabilities to rectify the situation.

By understanding continence better and improving the support available, care staff can help enhance the quality of life for individuals and, where relevant, for their families.

The purpose of this workbook is to supply you with basic information and understanding so that you can:

• recognise when people who use services may be having a problem
• know who you should be referring them to and what you and they can expect of health care professionals
• ensure that they have access to the same quality of treatment as non-disabled people
• become as informed as possible about the continence support needs of the individual concerned and make sure that everything possible is being done for them
• ensure that you are clear about your own responsibility and are discharging it as well as possible

The book is accompanied by an easy-read booklet for people with learning disabilities, Everybody Needs Toilets, and a reader for managers, Supporting Continence Management.

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Supporting Continence Management:

Alice Bradley with Loretto Lambe

2006            ISBN 1 904082 84 X           Price £20.00

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This reader can be used by managers to support staff members studying for the LDAF Certificate in Working with People who have Learning Disabilities but is also intended as a stand-alone guide for line managers, senior practitioners, carers and professionals with a specific interest in the topic of continence.

The reader explores the issues surrounding:

• the management of continence
• the self-management of continence for people with learning disabilities
• the support required to encourage choice in continence management
• the implications for people who work in services and for family carers

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Your Good Health

‘Appealing, colourful and easy to read text.’ OTPLD Newsletter

These illustrated booklets aim to inform people with a learning disability about health issues and explain how to get help for a variety of health issues. Written by health professionals working with groups of people with learning disabilities, these materials will increase awareness and help people with a learning disability get appropriate healthcare.

Alcohol and Smoking, 1998
ISBN 1 873791 24 0    £8.00    Add to shopping basket    Book cover

Breathe Easy, 1998 
ISBN 18 73791 14 3    £8.00    Add to shopping basket    Book cover

Coping with Stress, 1998 
ISBN 1 873791 64 X    £8.00    Add to shopping basket    Book cover

Eating and Drinking, 1998
ISBN 1 873791 93 3    £8.00    Add to shopping basket    Book cover

Epilepsy, 2002
ISBN 1 902519 77 9    £8.00    Add to shopping basket    Book cover

Exercise, 1998
ISBN 1 873791 28 3    £8.00    Add to shopping basket    Book cover

Getting Older – Feeling Good, 2004
ISBN 1 904082 70 X    £8.00    Add to shopping basket    Book cover

If you are Ill … , 1998
ISBN 1 873791 27 5    £8.00    Add to shopping basket    Book cover

Looking after your Teeth, 1998 
ISBN 1 873791 37 2    £8.00    Add to shopping basket    Book cover

Pregnancy and Childbirth, 2002 
ISBN 1 902519 88 4    £8.00    Add to shopping basket    Book cover

Seeing and Hearing, 1998
ISBN 1 873791 42 9    £8.00    Add to shopping basket    Book cover

Sex, 1998
ISBN 1 873791 47 X    £8.00    Add to shopping basket    Book cover

Using Medicine Safely, 1998
ISBN 1 873791 04 6    £8.00    Add to shopping basket    Book cover

Complete set
ISBN 1 873791 95 X       £95.00         Add to shopping basket          

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Page ref: '03books_health'         Owned by: t.tindell@bild.org.uk
Last updated: 27/07/2010